| If
you scan horizons and look for connections, you would have noticed
an increased
interest
in narrative based practice in medicine, and its coverage in such
prestigious publications as the British Medical Journal under the
editorship of Richard Smith. He is moving on to work in the increasingly
focused area of Chronic Disease Management.
Medical
education and training is also undergoing radical change (modernising
medical careers, M.M.C.) as we cover in this issue.
With these themes flowing about, I watched Panorama on BBC1 on the
18th July 2004. The title of the programme was “Fighting for
Care”. Andy Davies went on to succinctly fly across the tectonic
plates of health and social care for older people in England, and
slowly zoomed in on the edges and the cracks. From a great height
can be seen the topography of policy, procedure and bureaucracy.
However as the lens focussed closer to earth, it was possible to
witness the movements, actions and challenges of our fellow human
beings.
Panorama’s
report used three cases of patients with irreversible cognitive
decline at various stages of illness, to illustrate the efforts
that carers were making on their behalf, to get what they considered
adequate care for their loved ones in their time of need. The love,
dignity and respect by the carers’ for the person in their
charge was abundantly clear, as was their despair and fatigue.
The shock of diagnosis, the realisation of an inevitable decline,
the loss of activities of daily living and the carers’ stress
were poignantly illustrated.
Accessing
the appropriate knowledge, as always, is the key to solving problems.
It is salutary to be reminded what it must be like to deal with
the policies, procedures and assessments required for people with
acute and chronic physical and mental disability for the first time.
As
professionals we are lucky if we master the maze of health and social
care entitlements to which our patients should have access. A shift
in nuance and subtle changes in criteria and interpretation can
happen quickly, almost it seems, randomly.
After
so many major reviews of care systems in the last few years, the
most vulnerable, frail older people are still suffering. Having
a good advocate is crucial, both in a personal sense, but also in
a broader sense when the messages of the health ombudsman report
into NHS Continuing Care in 2003 are studied closely.
However
the take home message from this programme was as clear as it has
been for some time now – care costs.
Come the election, the UK’s citizens will have to decide to
elect a government who will raise the monies to fund care centrally.
The alternative is to find extra resources from their own social
networks – family, friends, neighbours and health professionals.
The former prospect does not have currency these days. For this
reason “Fighting for Care” is a useful benchmark for
the next decade. Increased self-reliance seems inevitable.
|
Letter
to the Editor:
Dear
Editor,
I welcomed the fact that representatives from BGS special interest
groups have met with colleagues from the Faculty of Old Age Psychiatry
to consider care homes and PCTs, as reported in July’s newsletter
(p14-15) but write to express my concerns regarding the product
of their deliberations. I was saddened to find the term “lost
tribe” in print, this joins “bed blocking” in
my lexicon of medical misnomers and begs the uncomfortable question,
how did they become lost?
It
is some 4 years since I contributed, with others from the Society,
to the report of an RCP working party entitled, The health and care
of older people in care homes - A comprehensive interdisciplinary
approach (published by the RCP June 2000). The Society’s “standards
of medical care” updated in 2003 refers to this RCP report
to provide further detail. The report is contemporary society policy
and I would suggest it has much value in the PCT led, Evercare tinted
world of 2004.
The
RCP report identified ten statements for action, that were used
to structure the report. Their central theme was to call for an
‘integrated interdisciplinary approach’ for health and
care services for care home residents. The report’s introductory
summary identified the need for:
- a
standardised interdisciplinary approach to assessment, care planning,
and care delivery.
- development
of the nurse as the lead practitioner in care homes.
- comprehensive
systems of service delivery to engage general and specialist aspects
of medical practice.
- all
practitioners engaged in care home practice to have appropriate
education and training and for relevant programmes of research.
It
would be helpful for joint working with colleagues from old age
psychiatry to build on previous work, perhaps critically reviewing
developmental progress against policy documents using simple surveys
may prove effective.
It
might even be worth revisiting aspects of the roles our forebears,
the Medical Superintendents, a suggestion made in the wake of modern
matrons. I am not recommending the institution of a bygone era,
or expressing any desire to inhibit the development and access to
modern medicine for the most frail. I do however sense from “Googling”
around, medical superintendents were very much more “in the
loop”, respected, able to influence care, and indeed, more
held to account than presently seems the general rule.
Yours
sincerely
Clive
Bowman FRCP
Chair, The Continuing Care Conference
Medical Director BUPA Care Services
Email: bowmanc@bupa.com
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